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Dr Stephen Connor - Do you know how to access palliative care when you need it?
As part of the Salzburg Questions Twitter campaign, people were asked, "Do you how to access palliative care when you need it?"
Dr Stephen Connor - Do you know how to access palliative care when you need it?
Stephen Connor 
This article first appeared on the EAPC blog, which will continue to publish more posts on the Salzburg Question series. It refers to the eighth Salzburg Question: Do you know how to access palliative care when you need it? Dr Stephen Connor, Executive Director of the Worldwide Hospice Palliative Care Alliance, London England, explores the eighth question in the Salzburg Questions series, that encourages a global discussion about the key issues affecting palliative care. The benefits of palliative care, and particularly early palliative care, for life-limiting illness, have been demonstrated but do most people know how to access palliative care when they need it? The data suggest not. The World Health Organization and WHPCA Global Atlas of Palliative Care at the End of Life reports that while 40 million people need palliative care annually, including 20 million at the end of life, only 14 per cent of that need is being met at the end of life, and less than 10 per cent overall. Less than one per cent of children who need it are receiving palliative care.In only 20 countries is palliative care well integrated into the healthcare system, while 78 per cent of those needing palliative care live in low- and middle-income countries with weak health systems.The theme of this year’s World Hospice and Palliative Care Day is: Universal Health Coverage and Palliative Care: Don’t leave those suffering behind!This draws attention to the fact that palliative care is an essential and needed service and a defining feature of Universal Health Coverage It is impossible to have Universal Health Coverage (UHC) without universal coverage of palliative care.So what exactly does UHC entail? Universal Health Coverage means that: ALL people can use the promotive, preventive, curative, rehabilitative and palliative health services they need, of sufficient quality to be effective, while also ensuring that the use of these services does not expose the user to financial hardship.Food distribution programme by WHPCA partner, the Centre for Palliative Care, in Korail slum, Dhaka, Bangladesh.Central to UHC is a focus on equity: ALL people must be able to access these services. Equally important is the provision that seeking these services must not expose people and families to financial hardship or force them into poverty through paying for expensive treatments, travel to services or through loss of income by the person who is ill or their carers.The sub-themes of World Hospice and Palliative Care Day are: Count, Care and Cost. These speak to the three dimensions that must be taken into account to realise UHC including palliative care: Political and population (count) – Who needs palliative care and who is covered?; Health services (care) – Which services are covered?; and Economics and financial protection (cost) – Who will pay for palliative care as part of UHC and how will they do this?UHC is a target under Sustainable Development Goal (SDG) #3: Good Health and Wellbeing. There is currently great political momentum around the SDGs. It is essential to keep palliative care at the forefront of these discussions so that as UHC is realised, anyone who needs palliative care will know what it is, how it could help, and how they or their loved ones could access it if they need it. Do you know how to access palliative care when you need it? Tweet your answer to #allmylifeQs.
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Eighth Salzburg Question to be launched ahead of World Hospice and Palliative Care Day
Stephen Connor speaking at Session 562 - Rethinking Care: Toward the End of Life.
Eighth Salzburg Question to be launched ahead of World Hospice and Palliative Care Day
Salzburg Global Seminar 
People around the world will be tested on their knowledge of how to access palliative care as part of the next Salzburg Question. The eighth question in the Twitter series will be launched on Friday, October 13, the day before World Hospice and Palliative Care Day. The Salzburg Questions series started earlier this year to kick-start an online conversation about end of life care. The campaign has connected people from all around the world and has resulted in significant discussion online. Those who have participated in the conversation so far have been using the #allmylifeQs hashtag. Between the launch of the series on February 20 and October 9, the hashtag had received 9.63 million impressions and was used in more than 2,800 tweets. The eighth question in the series is being released ahead of World Hospice and Palliative Care Day. October’s question is – Do you know how to access palliative care when you need it? Stephen Connor, executive director of the Worldwide Hospice Palliative Care Alliance, will help lead the discussion.The Salzburg Questions series has nine questions on matters involving palliative care. Each month, different individuals and institutions at the heart of the debate have shared a different question coinciding with an international day.These individuals and institutions were involved in Session 562 - Rethinking Care: Toward the End of Life. Other Salzburg Global Fellows who have led discussions so far include Agnes Binagwaho, Lynna Chandra, Suresh Kumar, Sheila Payne, Emmanuel Luyirika, Richard Harding, and Bruce Chernof.Salzburg Global Fellows are encouraged to take part in the conversation on Twitter on the day and afterward. They can also take part by sharing blog posts around each question.Blog platforms could include ehospice, the EAPC blog, Palliverse, and the IAHPC Newsletter.Participants on Twitter have already linked to research, podcasts, and papers during their discussions.If you hold a debate, workshop or Q&A event on a Salzburg Question, please film it so it can be uploaded to a dedicated YouTube channel. Send your video to katie.witcombe@kcl.ac.uk. A Twitter list of Salzburg Global Health Fellows has been created. If you would like to be added to this list, please let us know by subscribing or contacting us on Twitter at @SalzburgGlobal. List of dates, questions, and people leading discussions20 February 2017 - World Day of Social Justice - Why aren't countries accountable to commitment on #EOL care for vulnerable people? - Agnes Binagwaho20 March 2017 - World Happiness Day - Is dying well as important as living well? - Lynna Chandra07 April 2017 - World Health Day - How have you prepared for your death? - Suresh Kumar15 May 2017 - World Family Day - Will caring for your dying loved one bankrupt you emotionally and financially? - Sheila Payne20 June 2017 - World Refugee Day - 145 countries signed bit.ly/2ah31bH why do refugees have limited access to quality health care and #EOL care? - Emmanuel Luyirika11 July 2017 - World Population Day - How and what do you measure to ensure quality palliative & EOL care? - Richard Harding28 September 2017 - International Right to Know Day - Doctors, Nurses, do you want to die the way your patients die? - Bruce Chernof13 October 2017 - World Hospice and Palliative Care Day* - Do you know how to access #palliative care when you need it? - Stephen Connor10 November 2017 - World Science Day for Peace and Development - What future research is needed to improve care for people w advanced illness & towards the end of life? - Irene Higginson *This year's World Hospice and Palliative Care Day is taking place on Saturday, October 14. We will launch the question the day before to generate more discussion.
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Bruce Chernof - When the time comes to tell our story, what will we see?
Bruce Chernof - When the time comes to tell our story, what will we see?
Bruce Chernof 
This article first appeared on the EAPC blog, which will continue to publish more posts on the Salzburg Question series. It refers to the seventh Salzburg Question: Doctors, nurses; do you want to die the way your patients die? Today, on International Right to Know Day (28 September) Dr Bruce Chernof, President and Chief Executive Officer of The SCAN Foundation, California, USA, explores the seventh question in the Salzburg Questions that asks: Doctors, nurses; do you want to die the way your patients die? Around the world, healthcare providers are trained to be objective, rational, and clinical at the bedside. Long white coat, white dress, white smock, maybe a white hat – they are just signifiers, tropes, costumes in a performance, where we are the ‘good guys’ here to right wrongs and cure the sick. And of course, following the Hippocratic Oath: ‘First, do no harm.’ So this is what we do, day in, day out, with dedication and compassion, but always through that dispassionate clinical lens. Until . . . When the tables are turned, and the provider is the patient, what seemed like an uplifting virtuous drama reads much more like a comedy, or worse, a tragedy. It is time for all healthcare providers to take a deep, introspective look at our practice. Are we caring for the whole person or simply going about the business of treating patients? Despite all of our progress to transform healthcare delivery to make it more holistic, it remains utterly biased toward the antiseptic and technical aspects of treating patients. Healthcare prioritizes safety and cure above all else, yet in our own lives we are far more likely to prioritize autonomy, dignity, and happiness. We have an enormous number of technical measures to track the quality of medical services, yet almost no measures for quality of compassion or respect. All healthcare providers secretly pray for quality of life for ourselves, balanced with technical quality of care. So here is the little secret I have learned over three decades: all our patients want the exact same thing. We need to break the bonds both of incrementalism and lofty strategic planning that seem to be the brick walls and iron bars that serve as our stage’s proscenium and backdrop. Endless, minute Plan-Do-Study-Act cycles, policy reforms for one more new payment code, or dramatic 10-year global targets may be part of the solution, but these are not the answer. We need to commit to delivering care to every person and every family exactly as we would want to be treated. For as we all know, autonomy and dignity are not delivered through the sharp prick of an IV catheter or a light blue gown that doesn’t quite close completely at the back. When the time comes to tell our story, what will we see? Virtuous drama with an uplifting ending? Comedy of errors? Or simple tragedy? The choice is ours.
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Seventh Salzburg Question looks at whether health care professionals deliver care they would want
Seventh Salzburg Question looks at whether health care professionals deliver care they would want
Salzburg Global Seminar 
Health care professionals have been asked whether they would like to die in a similar fashion to their patients.The question has been asked as part of the Salzburg Questions series, an online conversation about palliative care.The series launched earlier this year on February 20 and has since connected respondents from all around the world. People participating in conversations on Twitter have been using the #allmylifeQs hashtag. Between the launch of the series and mid-August, the hashtag received 8.96 million impressions on Twitter. Earlier this morning, the seventh question in the series was released to coincide with International Right to Know Day. September's question is: "Doctors [and] nurses, do you want to die the way your patients die?"Bruce Chernof, president and chief executive officer of The SCAN Foundation, will help lead the discussion. The question provokes health care professionals to consider what end of life care they would expect and how this could be made available for the many, not the few.The Salzburg Questions series has nine questions on matters involving palliative care. Each month, different individuals and institutions at the heart of the debate have shared a different question coinciding with an international day.These individuals and institutions were involved in Session 562 - Rethinking Care: Toward the End of Life. Other Salzburg Global Fellows who have led discussions so far include: Agnes Binagwaho, Lynna Chandra, Suresh Kumar, Sheila Payne, Emmanuel Luyirika, and Richard Harding.Salzburg Global Fellows are encouraged to take part in the conversation on Twitter on the day and afterward. They can also take part by sharing blog posts around each question.Blog platforms could include ehospice, the EAPC blog, Palliverse, and the IAHPC Newsletter.Participants on Twitter have already linked to research, podcasts and papers during their discussions.If you hold a debate, workshop or Q&A event on a Salzburg Question, please film it so it can be uploaded to a dedicated YouTube channel. Send your video to katie.witcombe@kcl.ac.uk. A Twitter list of Salzburg Global Health Fellows has been created. If you would like to be added to this list, please let us know by subscribing or contacting us on Twitter at @SalzburgGlobal. List of dates, questions, and people leading discussions 20 February 2017 - World Day of Social Justice - Why aren't countries accountable to commitment on #EOL care for vulnerable people? - Agnes Binagwaho20 March 2017 - World Happiness Day - Is dying well as important as living well? - Lynna Chandra07 April 2017 - World Health Day - How have you prepared for your death? - Suresh Kumar15 May 2017 - World Family Day - Will caring for your dying loved one bankrupt you emotionally and financially? - Sheila Payne20 June 2017 - World Refugee Day - 145 countries signed bit.ly/2ah31bH why do refugees have limited access to quality health care and #EOL care? - Emmanuel Luyirika11 July 2017 - World Population Day - How and what do you measure to ensure quality palliative & EOL care? - Richard Harding28 September 2017 - International Right to Know Day - Doctors, Nurses, do you want to die the way your patients die? - Bruce Chernof13 October 2017 - World Hospice and Palliative Care Day* - Do you know how to access #palliative care when you need it? - Stephen Connor10 November 2017 - World Science Day for Peace and Development - What future research is needed to improve care for people w advanced illness & towards the end of life? - Irene Higginson  *This year's World Hospice and Palliative Care Day is taking place on Saturday, October 14. We will launch the question the day before to generate more discussion.
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Twitter reacts to Salzburg Question series on end of life care
Twitter reacts to Salzburg Question series on end of life care
Salzburg Global Seminar 
An online discussion on issues affecting care toward the end of life has caused a buzz on social media. Conversations have been taking place on Twitter throughout the year as part of the Salzburg Questions series, which launched on February 20. To keep track of the discussions and connect people from all around the world, those participating have been using the #allmylifeQs hashtag. Between February 20 and August 19, the hashtag received 8.962 million impressions on Twitter. More than 500 participants have posted a combined total of 2,661 tweets.  The Salzburg Questions series contains nine questions on matters involving palliative care, six of which have been launched to date.  Each month, different individuals and institutions at the heart of the debate have shared a different question coinciding with an international day. These individuals and institutions were involved in a Salzburg Global session in December: Rethinking Care: Toward the End of Life.  Salzburg Global Fellows who have led discussions include: Agnes Binagwaho, Lynna Chandra, Suresh Kumar, Sheila Payne, Emmanuel Luyirika, and Richard Harding.  Participants have already considered: Why aren’t countries accountable to commitment on end of life care for vulnerable people?Is dying well as important as living well?How have you prepared for your death?Will caring for your dying loved one bankrupt you emotionally and financially?145 countries signed the 1951 Refugee Convention [so] why do refugees have limited access to quality health care and end of life care?How and what do you measure to ensure quality palliative and end of life care? The questions have attracted various comments on the state of palliative care in different countries and how it can be improved. Read a selection of the comments below: .@SalzburgGlobal @livgretWe #Palliative & #EOL care is an universel right that needs 2 be accounted 4 #sgshealth #allmylifeQs #GlobalHealth — Agnes Binagwaho (@agnesbinagwaho) February 20, 2017 .@SalzburgGlobal Partnerships r needed at national & global level 4 better #Palliative & #EOL care & accountability #allmylifeQs #sgshealth https://t.co/LAaHD5au89 — Agnes Binagwaho (@agnesbinagwaho) February 23, 2017 To support others prepare, I'm working with @BupaUK to launch a video on End of Life Care conversations #allmylifeQs @SalzburgGlobal — Jemma Batte (@dr_batte) April 7, 2017 ...I became an organ donor, went to a DeathCafe and just finished Being Mortal by Atul Gawande! #allmylifeQs @SalzburgGlobal @DrSureshKumar — Jemma Batte (@dr_batte) April 7, 2017 "Have you prepared for your death?" I live gratefully and in the moment as much as I can. I talk about my wishes. #AllMyLifeQs #hpm — Lori Ruder (@LoriRuder) April 7, 2017 #allmylifeQs discussed with 15 psychologists @PsychSocIreland today @DrSureshKumar as part of a death cafe conversation — Kathleen McLoughlin (@kemcloughlin) April 7, 2017 Let's work on creating safe space to talk about #death #dying #endoflife It's something we all must face #liveuntilyoudie #allmylifeQs — CherylW (@CWChapter2) April 8, 2017 I have a deathbed playlist of songs to be played while I am dying. #allmylifeQs https://t.co/IgOKFf7lJc — Lizzy Miles (@LizzyMiles_MSW) April 8, 2017 61% of US bankruptcies are due to medical costs. Will caring for your loved one bankrupt you? #allmylifeQs #hpmglobal pic.twitter.com/lM2j5pZodL — Stephen Connor (@srconnor) May 15, 2017 Time to consider how to support families & close friends of those who are facing serious illness #allmylifeQs https://t.co/1mBXPjuvd4 — Irene Higginson (@ij_higginson) May 15, 2017 The #refugees initiatives should be funded to include #palliativecare to reduce suffering for those with need @APCAssociation #ALLMYLIFEQS https://t.co/xZKN0VdKbj — Dr Emmanuel Luyirika (@DrLuyirika) June 20, 2017 #allmylifeQs Quality EOL care should be measured by culturally sensitive standards, not only by availability of services&drugs. — Dr. Liza Manalo (@lizamanalomd) July 11, 2017 The next question will be put forward on September 28, which coincides with International Right to Know Day. Bruce Chernof, President and CEO of The SCAN Foundation, will ask: Doctors, Nurses, do you want to die the way your patients die? Salzburg Global Fellows are encouraged to take part in the conversation on Twitter beforehand, on the day, and afterward. They can also take part by sharing blog posts around each question. Blog platforms could include ehospice, the EAPC blog, Palliverse, and the IAHPC Newsletter. So far, participants on Twitter have linked to research, podcasts and papers during their discussions. If you hold a debate, workshop or Q&A event on a Salzburg Question, please film it so it can be uploaded to a dedicated YouTube channel. Send your video to katie.witcombe@kcl.ac.uk.  A Twitter list of Salzburg Global Health Fellows has been created. If you would like to be added to this list, please let us know by subscribing or contacting us on Twitter at @SalzburgGlobal. List of dates, questions, and people leading discussions 20 February 2017 - World Day of Social Justice - Why aren't countries accountable to commitment on #EOL care for vulnerable people? - Agnes Binagwaho 20 March 2017 - World Happiness Day - Is dying well as important as living well? - Lynna Chandra 07 April 2017 - World Health Day - How have you prepared for your death? - Suresh Kumar 15 May 2017 - World Family Day - Will caring for your dying loved one bankrupt you emotionally and financially? - Sheila Payne 20 June 2017 - World Refugee Day - 145 countries signed bit.ly/2ah31bH why do refugees have limited access to quality health care and #EOL care? - Emmanuel Luyirika 11 July 2017 - World Population Day - How and what do you measure to ensure quality palliative & EOL care? - Richard Harding 28 September 2017 - International Right to Know Day - Doctors, Nurses, do you want to die the way your patients die? - Bruce Chernof 13 October 2017 - World Hospice and Palliative Care Day* - Do you know how to access #palliative care when you need it? - Stephen Connor 10 November 2017 - World Science Day for Peace and Development - What future research is needed to improve care for people w advanced illness & towards the end of life? - Irene Higginson   *This year's World Hospice and Palliative Care Day is taking place on Saturday, October 14. We will launch the question the day before to generate more discussion.
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Apply to be part of the 2018 Sciana cohort
Apply to be part of the 2018 Sciana cohort
Salzburg Global Seminar 
Leaders in health and health care are being encouraged to become part of the second cohort of a groundbreaking international initiative. Sciana – The Health Leaders Network – is inviting new members to join the next cohort, who will begin their work in June next year. The network brings together professionals from the UK, Germany, and Switzerland to improve health and health care across Europe and further afield. The initiative, facilitated by Salzburg Global Seminar, is the brainchild of three organizing partners: The Health Foundation (UK), Careum Stiftung (Switzerland), and the Robert Bosch Stiftung (Germany).  Each cohort consists of 18 leaders and emerging leaders, six each from Germany, Switzerland, and the UK. They attend four four-day gatherings over a two-year period.  What are the selection criteria? Sciana members are leaders in health or health care and have a proven outstanding record of achievement. They are already well established in their chosen career, which they are anticipated to continue developing, regularly exceeding expectations and influencing peers and diverse organisations.Sciana members are entrepreneurial and strategic thinkers, who understand the scale and complexity of key challenges facing health and health care systems and how to manage the tensions between long-term policy goals and short-term political pressures.Sciana members have a demonstrated interest in collaboration and innovation across sectoral boundaries, both nationally and internationally.Energetic and curious, members are not afraid to ask uncomfortable questions and are able to motivate others to implement unconventional measures.Sciana members have excellent English (further languages are an advantage) and superb communication skills.Sciana members include health policymakers and practitioners, as well as academics, journalists, elected officials, other public sector leaders or from business who are primarily living and working in one of the three countries of the founding partners (UK, Switzerland and Germany). Exceptional applications from other countries which exceed the selection criteria will be considered on a rolling basis. What are the dates? Meeting 1 | 10 - 13.06.2018Meeting 2 | 24 - 27.11.2018Meeting 3 | 13 - 16.05.2019Meeting 4 | 24 - 27.11.2019 Where are we meeting? Meetings take place at Schloss Leopoldskron, Salzburg, Austria. Meetings begin around lunchtime on day one and end early afternoon on day four. All Sciana members must be committed to attending all four days of each of the four meetings. This is non-negotiable and a prerequisite for any application. How do I apply? If you would like to apply for the second cohort, please email akoblmueller@salzburgglobal.org your CV, along with a  letter of motivation which includes: Why you wish to join the networkWhat you would bring to the network and what you would aim to get out of itA brief outline (up to 500 words) of a recent health policy initiative or innovation, drawing on your own experience or which you know well, and which you think would be of interest to other Sciana membersConfirmation that you are available for all four meetings The second cohort is open for application until September 29 2017. If you meet the criteria for pre-selection, John Lotherington at Salzburg Global Seminar will contact you to outline the next steps. For further information and answers to FAQs, please click here. The first cohort met in April earlier this year. On the final day of the program, members focused on what they would do after leaving Salzburg. They outlined three projects at varying stages of development. Watch the video below for highlights from the first cohort's meeting in April.
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Sixth Salzburg Question launches on World Population Day
Sixth Salzburg Question launches on World Population Day
Oscar Tollast 
People around the world are being asked to consider a new talking point as part of a global discussion on end of life care. Earlier today, the sixth question in the Salzburg Questions series was launched to coincide with World Population Day. The online series has been engaging people in conversation on Twitter since February 20 about issues surrounding palliative care. July’s question is, “How and what do you measure to ensure quality palliative & EOL care?” Richard Harding, reader in palliative care and director of global programmes and partnerships at Cicely Saunders Institute, King’s College London, marked the start of a discussion with a blog entry. Each question in the Salzburg Questions series is launched on an international day of observation and led by people with expertise in the field of palliative care. These people were involved in a Salzburg Global session in December: Rethinking Care Toward the End of Life. To keep track of the conversations taking place, participants are asked to use the #allmylifeQs hashtag. At the time of writing, the #allmylifeQs hashtag has generated more than 8.65 million impressions on Twitter. There have been 2,551 tweets involving 500 participants from around the world. Salzburg Global is encouraging as many Fellows as possible to join in with this conversation today and for the rest of the month.  People are also encouraged to write blogs, which could be hosted on ehospice; the European Association for Palliative Care (EAPC) blog; Palliverse; and the International Association for Hospice and Palliative Care (IAHPC) newsletter. Vlogs are also welcome and should be sent to katie.witcombe@kcl.ac.uk so they can be posted to a dedicated YouTube channel. Please join in the conversation and remember to use the hashtag #allmylifeQs. A Twitter list of Salzburg Global Health Fellows has been created. If you would like to be added to this list, please let us know by subscribing or contacting us on Twitter at @SalzburgGlobal. List of dates, questions, and people leading discussions 20 February 2017 - World Day of Social Justice - Why aren't countries accountable to commitment on #EOL care for vulnerable people? - Agnes Binagwaho 20 March 2017 - World Happiness Day - Is dying well as important as living well? - Lynna Chandra 07 April 2017 - World Health Day - How have you prepared for your death? - Suresh Kumar 15 May 2017 - World Family Day - Will caring for your dying loved one bankrupt you emotionally and financially? - Sheila Payne 20 June 2017 - World Refugee Day - 145 countries signed bit.ly/2ah31bH why do refugees have limited access to quality health care and #EOL care? - Emmanuel Luyirika 11 July 2017 - World Population Day - How and what do you measure to ensure quality palliative & EOL care? - Richard Harding 28 September 2017 - International Right to Know Day - Doctors, Nurses, do you want to die the way your patients die? - Bruce Chernof 13 October 2017 - World Hospice and Palliative Care Day* - Do you know how to access #palliative care when you need it? - Stephen Connor 10 November 2017 - World Science Day for Peace and Development - What future research is needed to improve care for people w advanced illness & towards the end of life? - Irene Higginson   *This year's World Hospice and Palliative Care Day is taking place on Saturday, October 14. We will launch the question the day before to generate more discussion.
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