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Sara Riggare

Uppsala University, Sweden

Sara Riggare is a "digital patient" who wants to give people with chronic diseases the map she did not have. She uses what she has learnt from managing her Parkinson's disease for over 35 years in her work and research at Uppsala University. She is active in the fields of models and methods for digital self-care in chronic disease, self-tracking, patient engagement/participation/empowerment, and personal science. Sara had her first symptoms of Parkinson's disease in her early teens and advocates for patients' right to access to their own medical data. She is a highly appreciated speaker, both in Sweden and internationally and has a blog called "Not patient but im-patient" (www.riggare.se <https://nam10.safelinks.protection.outlook.com/?url=http%3A%2F%2Fwww.riggare.se%2F&data=04%7C01%7C%7C66e4971b034b4665573508d9ea3f193b%7C3a3e9e2699dd42149f0a5292f21decfe%7C0%7C0%7C637798379021974803%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000&sdata=JqS%2BmhxQ5cr4HukTZTGD%2B%2FBlQdWnfsrUdbq25E%2BFzQA%3D&reserved=0>). Sara is a member of the Patient Panel of the British Medical Journal, ambassador to the World Parkinson Congress, and advisor to the Swedish government's coordinator for Life Science. Focus Magazine in Sweden named her Swede of the year in medicine in 2018. She served on the faculty of Session 548, The Promise of Data: Will this Bring a Revolution in Health Care?, in 2015, Session 553, Toward a Shared Culture of Health: Enriching and Charting the Patient-Clinician Relationship , and has participated in SCIANA - the health leaders' network at Salzburg Global Seminar.

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